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When you first learn of your child’s diagnosis, it often follows with warnings of all the milestones they will not reach, all the activities they will not be able to participate in, and a lot of broken dreams that you once had for your child
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The never-ending role of wife, mother, and caregiver as well as the daily tasks of keeping life in general rolling can become overwhelming.  As caregivers it’s very easy to put yourself on the back burner and in turn not taking time out for yourself can become more of a routine than you realize. 
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Raising a Rare Child by Pamela Tucker. Prior to her birth, our daughter Harley was expected to be a “normal” and healthy child. We had no indications prenatally that she would have any complications or abnormalities after birth
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Being a parent is hard work, there’s no doubt about it. We could love our kids to the end of the earth and still fall, exhausted and crying, into bed at the end of each night. Every parent is just...
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