Please welcome Leah Trotter to our blog; an incredible parent and advocate for her son Jack. She's here today to share her raw emotions about her experience with her son and his rare disorder.
My story starts with a trauma. It is hard to think of your life in those lines. I never actively think, “wow, what a trauma we have suffered.” But the feeling is always there, in my gut, and it has dictated my thoughts and actions for over two years now. Before my son was born, I thought of trauma in a disconnected and almost fantastical way. Trauma was what happened on Grey’s Anatomy and it was usually wrapped up nicely in under an hour. Real life trauma feels like you are fighting with your own body to breathe in and out; like your heart is walking around outside of your body and you can’t get it back where it’s supposed to be. From the moment my son was life-flighted at 5 days old in status epilepticus suffering acute respiratory failure, I have been in a constant state of stress. I feel stuck in an endless loop of the fight-or-flight response. Where’s the exit and how do I get off? There really isn’t one so I think we are supposed to make our way out. I am ready to switch lanes and learn to thrive, advocate for Jack, and be happy without the feeling of impending doom lurking over my shoulder.
Jack was born seemingly healthy but fighting an invisible battle inside his little body. At five days old, Jack’s disorder reared its ugly head by putting him into status epilepticus (a dangerous condition in which epileptic seizures follow one another without recovery of consciousness between them). This caused Jack to suffer acute respiratory failure and he was life-flighted to the leading children’s hospital in our state. This was the first of many admissions for my newborn son and I was on pins & needles the entire stay. Admitted to the PICU, Jack continued to seize without an obvious cause. There was a flood of white coats in my son’s hospital room; we saw neurology, genetics, infectious disease, GI, blood disorder doctors, etc. Opinions lit up like wildfire and spread before I even had the chance to process the reality of the situation. PICU doctors started Jack on 4 different antibiotics to treat for Meningitis. It had not been confirmed that Jack had meningitis, but his CSF from his first LP was yellow in color. Forgetting his jaundice diagnosis, the doctor panicked and threw the kitchen sink of antibiotics at Jack, meaning he had to get a PICC line placed. Jack did not have meningitis but instead was diagnosed with an HIE (hypoxic ischemic encephalopathy) a few days later. We were told he had a significant brain injury, etiology unknown and unsearched for, and to prepare for a future with cerebral palsy and anti-epilepsy medications. It was presented in the most somber way as if our lives were over. Cue fight-or-flight in this mama. This chaotic hospitalization set the tone for Jack’s medical journey and my mistake was letting it happen that way. To keep with the driving metaphor, I was asleep behind the wheel. Looking back at myself, I see a doe-eyed and inexperienced mother who was completely unprepared for the harsh realities of life.
I think there have been butterflies in my stomach since the day I realized that my infant son had a real-life brain injury. Again, as sad and stupid as this is, a brain injury sounded like such a far-off fantastical thing…a thing that couldn’t happen to me, not my son because surely that doesn’t happen in real life. It will be a true miracle if I can ever forgive myself the indiscretions of ignorance. Anyway, it took five more months to figure out what was going on with my son. Jack was in and out of the hospital suffering from intractable seizures. He was on Phenobarbital, Topamax, Keppra, Fosphenytoin, and STILL having seizures. During a particularly difficult hospitalization at 12-weeks old, Jack began having gelastic and dacrystic seizures (aka terrifyingly creepy laughing and crying seizures). These are straight out of your worst nightmares and most commonly associated with a certain type of brain tumor so Jack was rushed for an MRS (basically a more in-depth MRI). Following this test, Jack’s neurologist diagnosed him with Mitochondrial Disease and told us that she not only saw an injury to Jack’s brain, but also atrophy that had begun to progress and would continue to, until he died. My husband asked if there was any hope for our son and the neurologist just looked at the ground and shook her head no. We lived with this for another 3 months before Jack was properly diagnosed with Pyridoxine-Dependent Epilepsy (PDE). This is a rare genetic and neurometabolic disorder that caused Jack’s HIE and all other symptoms/diagnoses.
The signs had been missed and my son suffered for 6 months unnecessarily. However, I learned how to fight for my son during this time. My fight-or-flight instinct kicked that doe-eyed mama into gear. The only problem is that I have been fighting ever since and I feel trapped by own response to these events and all I’ve experienced trying to help my son. I’m tired, but don’t know how to stop. I feel like that toy at the bottom of the toybox that didn’t get turned off it’s making noise, annoying everyone. You know the one.
Jack is 2.5 years old now and he is doing so well. His disorder is metabolic, so his strict diet dictates absolutely everything in our lives basically. He has some different needs and struggles, but he is also thriving. The past 6 months have been the most stable of the past few years. There has been so much to celebrate with Jack’s development, but I am hesitant to do so. The other shoe has always dropped with regard to Jack’s disorder and I live in fear. I know hospitalizations will be a part of our lives and I have accepted that and even know how to thrive there, but I find myself struggling to thrive during the “normal” periods. There have been more and more of these lately, and I want to enjoy them freely without the looming fear. I am struggling most with just being Jack’s mom. I have had to be his physical, occupational, feeding, and speech therapist for the past few years and will be for the rest of his life. I took on the job of healing Jack’s brain like his life depended on it (oh wait…). I am such a believer in neuroplasticity and my son is an attribute to its possibilities, thus I have been hitting the early intervention hard since Jack was tiny. As much as I am his cheerleader, I am also his drill sergeant. I’ve heard Jack’s physical therapist say to him, “don’t look at your mom because you know she’s not going to help you” in reference to completing a therapy activity. Poor Jack Jack! I think it’s stuck in my brain that if I am not actively fighting for Jack then I am giving up on him. But for the sake of myself and my entire family, I am seeking balance. I am learning to live instead of just surviving each day, and I say learning because it is a work in progress. It’s good to see what’s in my rearview, but what’s most important lies ahead!
I may always struggle to find balance in Jack’s care. I know there will always be battles with insurance for some of Jack’s services, and I know there will be ups and downs in his health. I can take all that in stride, but It’s daily life that I need to get better at. I think maybe being a good advocate for my child also means knowing when to stop fighting and just be his mom because the truth is that I’ve never really had the opportunity to just be “mom” to Jack. That was taken away from me early on, but it’s up to me to take it back. This journey has taught me how to be the mom that Jack needs. It’s taken a long time, but I finally see my exit. I’m ready to follow Jack’s lead and spend less time looking over my shoulder.
Thank you!
Follow along with Leah and Jack on Instagram and their website.
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CONTACT Mr Jude Gabriel call (2349010175450 or WhatsApp him through this number 2349010175450 or Email: illuminatiworldofsociety1@gmail.com Hello everyone my name is David Owen am from USA I am here to give a testimony on how I joined the illuminati brotherhood, I was trying to join this organization for so many years now,I was scammed by fake agent in south Africa and Nigeria,I was down,I could not feed my self and my family anymore and I tried to make money by all miss but all invail, I was afraid to contact any illuminati agent because they have eat my money,One day I across a post of someone giving a testimony, thanking a man called Jude Gabriel of being helping him to join the illuminati brotherhood, then I look at the man email and the phone number that was written there, it was a nigeria number I was afraid to contact him because a nigerian agent eat my $2000 and go away with the money then I was very tired, confused and I decided to contact the person that was given the testimony and i called him and I communicated with him on phone calls before he started telling me his own story about when he wanted to join, he told me everything to do, then I made up my mind and called the agent called Jude Gabriel and he told me everything to do, and I was initiated, surprisely I was given my benefit of being a new member of the great illuminati brotherhood I was so happy,For those of you trying to join this organization this is your opportunity for you to join CONTACT MR Jude Gabriel call (2349010175450 or WhatsApp him 2349010175450 or email: illuminatiworldofsociety1@gmail.com
helen mathews
My name is Helen Mathews, and I am filled with joy and gratitude as I share my incredible experience. For many years, I had dreams of changing my life and achieving financial freedom. When I was facing difficulties and had almost lost hope, I came across Chief Ade, who guided me with his spiritual support and wisdom. After following his advice and receiving his assistance/winning numbers, I was amazed when I won a $5 million prize that completely transformed my life. Today, I am able to support my family, fulfill my dreams, and help those around me. I want to express my deepest appreciation to Chief Ade for his kindness, guidance, and the confidence he gave me during my journey. This experience has brought me happiness and a new chapter in my life, and I am truly thankful. Email: chiefadespellhome@gmail.com || WhatsApp +234 901 380 6328
Denzel Chau
When the Bible states we are gods of the earth, I felt this truth during my encounter with Lord Meduza, the spell master. I’m Denzel Chau and I’m here to present the individual who transformed my life from poverty to becoming a multimillionaire Jackpot victor. I reached out to Lord Meduza for assistance with winning numbers and he successfully helped me after casting a lottery spell for me. I utilized the numbers to enter the Jackpot lottery and I was announced as the winner of $368,000,000. Acquiring the numbers from Lord Meduza took 72 hours and I want to express my gratitude publicly to him for his remarkable service to humanity and for deciding to assist me during my life’s lowest moment. Not everyone is meant to win the lottery, but with the assistance of Lord Meduza, you can achieve it. To reach him today, drop a message to his email: lordmeduzatemple@hotmail.com or Whats-App +1 807-798-3042 . To learn more, go to his webpage: lordmeduzatemple.com and you’ll appreciate it later.
helen mathews
My name is Helen Mathews, and I am filled with joy and gratitude as I share my incredible experience. For many years, I had dreams of changing my life and achieving financial freedom. When I was facing difficulties and had almost lost hope, I came across Chief Ade, who guided me with his spiritual support and wisdom. After following his advice and receiving his assistance/winning numbers, I was amazed when I won a $5 million prize that completely transformed my life. Today, I am able to support my family, fulfill my dreams, and help those around me. I want to express my deepest appreciation to Chief Ade for his kindness, guidance, and the confidence he gave me during my journey. This experience has brought me happiness and a new chapter in my life, and I am truly thankful. Email: chiefadespellhome@gmail.com || WhatsApp +234 901 380 6328
Heather Delaney
Honestly, This is an amazing and interesting testimony. I highly recommed this love spell caster to everyone. My name is Heather Delaney. I married the love of my life Riley on 10/02/15 and we now have two beautiful girls Abby & Erin, who are conjoined twins, that were born 07/24/16. My husband left me and moved to be with another woman. I felt my life was over and my kids thought they would never see their father again. I tried to be strong just for the kids but I could not control the pains that tormented my heart, my heart was filled with sorrows and pains because I was really in love with my husband. I have tried many options but he did not come back, until i met a friend that directed me to Dr. Excellent a spell caster, who helped me to bring back my husband after 11hours. Me and my husband are living happily together again, This man is powerful, contact Dr. Excellent if you are passing through any difficulty in life or having troubles in your marriage or relationship, he is capable of making things right for you. Here his contact. Call/WhatsApp him at: +2348084273514 "Or email him at: Excellentspellcaster@gmail.com ,For more information visit his website:https://drexcellentspellcaster.godaddysites.com
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Amelia
How I Got My Ex Back with the Help of a Spell Caster +2349047144277
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helen mathews
My name is Helen Mathews, and I am filled with joy and gratitude as I share my incredible experience. For many years, I had dreams of changing my life and achieving financial freedom. When I was facing difficulties and had almost lost hope, I came across Chief Ade, who guided me with his spiritual support and wisdom. After following his advice and receiving his assistance/winning numbers, I was amazed when I won a $5 million prize that completely transformed my life. Today, I am able to support my family, fulfill my dreams, and help those around me. I want to express my deepest appreciation to Chief Ade for his kindness, guidance, and the confidence he gave me during my journey. This experience has brought me happiness and a new chapter in my life, and I am truly thankful. Email: chiefadespellhome@gmail.com || WhatsApp +234 901 380 6328
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Chole Martins
I still can’t believe this is real, but I actually won the lottery jackpot! It feels like a dream come true. For years, I would occasionally play without expecting much, just hoping that one day luck would finally be on my side—and it finally happened when I came across a testimony on how Dr Benjamin the great spell caster had helped alot of people win, so I reached out to him, he told me what to do and I followed his instructions, after 48 hours he gave some numbers to play, I did played the numbers as instructed.
The moment I checked my numbers and realized they all matched, my heart started racing. I had to double-check multiple times because I couldn’t believe what I was seeing. Winning the Powerball jackpot of $107,000,000,00. This has completely changed my life. It’s given me financial freedom, peace of mind, and the opportunity to support my family and invest in my future. Here are his contact information.
Email: drbenjaminlottospell711@gmail.com
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Chole Martins
I still can’t believe this is real, but I actually won the lottery jackpot! It feels like a dream come true. For years, I would occasionally play without expecting much, just hoping that one day luck would finally be on my side—and it finally happened when I came across a testimony on how Dr Benjamin the great spell caster had helped alot of people win, so I reached out to him, he told me what to do and I followed his instructions, after 48 hours he gave some numbers to play, I did played the numbers as instructed.
The moment I checked my numbers and realized they all matched, my heart started racing. I had to double-check multiple times because I couldn’t believe what I was seeing. Winning the Powerball jackpot of $107,000,000,00. This has completely changed my life. It’s given me financial freedom, peace of mind, and the opportunity to support my family and invest in my future. Here are his contact information.
Email: drbenjaminlottospell711@gmail.com
Whatsapp: +18588585788
helen mathews
My name is Helen Mathews, and I am filled with joy and gratitude as I share my incredible experience. For many years, I had dreams of changing my life and achieving financial freedom. When I was facing difficulties and had almost lost hope, I came across Chief Ade, who guided me with his spiritual support and wisdom. After following his advice and receiving his assistance/winning numbers, I was amazed when I won a $5 million prize that completely transformed my life. Today, I am able to support my family, fulfill my dreams, and help those around me. I want to express my deepest appreciation to Chief Ade for his kindness, guidance, and the confidence he gave me during my journey. This experience has brought me happiness and a new chapter in my life, and I am truly thankful. Email: chiefadespellhome@gmail.com || WhatsApp +234 901 380 6328
helen mathews
My name is Helen Mathews, and I am filled with joy and gratitude as I share my incredible experience. For many years, I had dreams of changing my life and achieving financial freedom. When I was facing difficulties and had almost lost hope, I came across Chief Ade, who guided me with his spiritual support and wisdom. After following his advice and receiving his assistance/winning numbers, I was amazed when I won a $5 million prize that completely transformed my life. Today, I am able to support my family, fulfill my dreams, and help those around me. I want to express my deepest appreciation to Chief Ade for his kindness, guidance, and the confidence he gave me during my journey. This experience has brought me happiness and a new chapter in my life, and I am truly thankful. Email: chiefadespellhome@gmail.com || WhatsApp +234 901 380 6328
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Becca Wood
Hi, wishing good fortune to everyone who comes across this comment! I went bankrupt last year due to failed business ideas. I used to enjoy playing the lottery for fun but as my situation worsened financially, I sought help to win big this time and found a man called MEDUZA, who has assisted numerous individuals worldwide with their financial issues. This man prepared a powerful spell for me that enabled him to get the secrete lucky numbers for me, I played the game with the numbers and to my astonishment, I discovered that I had won $259 million Jackpot after 2 weeks just has he said; Today, I’m now free of debt and I own different investments globally. Without Meduza, I wouldn’t have made it through the tough times I experienced last year. Truly, MEDUZA is a divine presence among us. If you are currently struggling in aspect of your life, reach out to MEDUZA through the below information’s
Whats-App +1 807 798 3042
Email: lordmeduzatemple@hotmail.com
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Jessica Thompson
I still can’t believe this is real, but I actually won the lottery jackpot! It feels like a dream come true. For years, I would occasionally play without expecting much, just hoping that one day luck would finally be on my side—and it finally happened when I came across a testimony on how Dr HERRY the great spell caster had helped alot of people win, so I reached out to him, he told me what to do and I followed his instructions, after 24 hours he gave some numbers to play, I did played the numbers as instructed.
The moment I checked my numbers and realized they all matched, my heart started racing. I had to double-check multiple times because I couldn’t believe what I was seeing. Winning the Powerball jackpot of $307,000,000,00. This has completely changed my life. It’s given me financial freedom, peace of mind, and the opportunity to support my family and invest in my future. Here are his contact information.
Email: drherry189@gmail.comalso
Message Dr Herry on WhatsApp. https://wa.me/message/3C6ZDDGHSXBAE1
pedokol
Hello Everyone, I want to quickly use this medium opportunity to share a testimony on how I was directed to a Legit and real illuminati member who have transformed my life from grass to grace, from being poor to a rich man who can now boast of a healthy and wealthy life without stress or financial difficulties. After so many months of trying to be a member of the illuminati and i was scammed the sum of $7,000 i became so desperate in being a member online who will not add to my pains, then i decided to contact a friend of mine who recently became a member, we discussed about the issue and to our conclusion she told me about a man called Mr thomascox who is the grand master in the whole of Africa. So i applied to become a member of illuminati easily without stress and all the preparations were made concerning how to become a member in two(2) days i became a member and the sum of $5,000,000 (five million dollars) was deposited into my bank account and many benefits, so i want to advice anyone who wants to become a member should call or WhatsApp him: +2349138177665 or email (thomascox0038@gmail.com) For more information
wowopic
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thomascox
I want to share with you my testimony of how I joined this great organization of illuminate, really I was so poor and my life was almost to die and I tried many times to join illuminati but all was in vain whereby I was facing fake people who were claiming to be agents of illuminati. They ate my money without helping me out there. I lost hope in illuminati. But because i was very interested and focused on my dream, I continued trying there I meant an agent called Mr thomascox. from South Africa Cape Town but currently in Nigeria who told me he will help me out still i didn’t trusted him at all because of the first pain i passed through, still also asked me to send him money there i get scared but with time he sent me my membership i’d card there i proved it and trust in him little and i accepted and send him money, but what amazed me is that immediately after sending him money, within the 24 hours the temple headquarter sends me 3 million dollars directly on my account as my first benefit there i trusted him more and he is the only agent i trust because he helped me seriously. So my friend, if you want to join I am going to help you and connect you to that agent but you must be serious. I don’t have that authority of joining anyone who is serious. I will connect you to him. on WhatsApp +2349138177665 or email him (thomascox0038@gmail.com
Juliette Lamour
I’m a testament that miracles happen. When I turned 18, My grandfather encouraged me to buy a lottery ticket for fun but I wasn’t pleased with the way I kept on playing without winning. I was eager to learn more about how to win the lottery and when I searched the internet I found numerous articles saying how they won the lottery through his spells and I decided to give it a try by contacting Lord Meduza.. I’d love to say that this man is such a sweet soul who got my back all through the process of making me a lottery spell to win the lottery. The numbers he gave me won me the LOTTO 6/49 Gold Ball of a whopping $48,000,000 Million Canadian Dollars. Right now, my family and I are blessed. Thank you LORD MEDUZA for making this win come true for me and my family.. Anyone that needs his help can go to his website: lordmeduzatemple.com or Email: lordmeduzatemple@hotmail.com or Whats_App: +1 807 798 3042 to learn more about his works.
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David Owen
CONTACT Mr Jude Gabriel call (2349010175450 or WhatsApp him through this number 2349010175450 or Email: illuminatiworldofsociety1@gmail.com Hello everyone my name is David Owen am from USA I am here to give a testimony on how I joined the illuminati brotherhood, I was trying to join this organization for so many years now,I was scammed by fake agent in south Africa and Nigeria,I was down,I could not feed my self and my family anymore and I tried to make money by all miss but all invail, I was afraid to contact any illuminati agent because they have eat my money,One day I across a post of someone giving a testimony, thanking a man called Jude Gabriel of being helping him to join the illuminati brotherhood, then I look at the man email and the phone number that was written there, it was a nigeria number I was afraid to contact him because a nigerian agent eat my $2000 and go away with the money then I was very tired, confused and I decided to contact the person that was given the testimony and i called him and I communicated with him on phone calls before he started telling me his own story about when he wanted to join, he told me everything to do, then I made up my mind and called the agent called Jude Gabriel and he told me everything to do, and I was initiated, surprisely I was given my benefit of being a new member of the great illuminati brotherhood I was so happy,For those of you trying to join this organization this is your opportunity for you to join CONTACT MR Jude Gabriel call (2349010175450 or WhatsApp him 2349010175450 or email: illuminatiworldofsociety1@gmail.com
David Owen
CONTACT Mr Jude Gabriel call (2349010175450 or WhatsApp him through this number 2349010175450 or Email: illuminatiworldofsociety1@gmail.com Hello everyone my name is David Owen am from USA I am here to give a testimony on how I joined the illuminati brotherhood, I was trying to join this organization for so many years now,I was scammed by fake agent in south Africa and Nigeria,I was down,I could not feed my self and my family anymore and I tried to make money by all miss but all invail, I was afraid to contact any illuminati agent because they have eat my money,One day I across a post of someone giving a testimony, thanking a man called Jude Gabriel of being helping him to join the illuminati brotherhood, then I look at the man email and the phone number that was written there, it was a nigeria number I was afraid to contact him because a nigerian agent eat my $2000 and go away with the money then I was very tired, confused and I decided to contact the person that was given the testimony and i called him and I communicated with him on phone calls before he started telling me his own story about when he wanted to join, he told me everything to do, then I made up my mind and called the agent called Jude Gabriel and he told me everything to do, and I was initiated, surprisely I was given my benefit of being a new member of the great illuminati brotherhood I was so happy,For those of you trying to join this organization this is your opportunity for you to join CONTACT MR Jude Gabriel call (2349010175450 or WhatsApp him 2349010175450 or email: illuminatiworldofsociety1@gmail.com
cora cuthbert
I want to give thanks today, not just for the lottery win that changed my life, but for the man God used to guide me, ( Chief Ade ). At a time when I was confused, worried, and almost losing hope, Chief Ade spoke words of wisdom and encouragement into my life. He didn’t only promise me riches, but he reminded me to stay hopeful, to act with faith, and to never give up on myself. When I eventually decided to try the lottery, I did so with a different mindset, one of calmness and belief, not desperation. And with the help of Chief Ade, I won the $18,000,000 dollars. It still feels like a dream. Chief Ade, I am deeply grateful. Your guidance helped me see possibilities again when I could only see problems. This victory is not just mine, it is a testimony of your kindness and the power of wise counsel. Thank you for being a light in my darkest moment, I will never forget what you’ve done for me . Email: chiefadespellhome@ gmail.com or WhatsApp +234 901 380 6328 .