The end of this month marks Arthrogryposis Awareness Day!
What is Arthrogryposis?
Arthrogryposis Multiplex Congenita (AMC) describes a congenital joint contracture in two or more areas of the body. Any joint can be affected such as feet, shoulders, wrists, hands, jaw, and spine. "Children born with one or more joint contractures have abnormal fibrosis of the muscle tissue causing muscle shortening, and therefore are unable to perform active extension and flexion in the affected joint or joints." (source Wikipedia)
These joint contractures occur 1 in every 3,000 live births and are divided into three groups: amyoplasia, distal arthrogryposis, and syndromic. There are over 400 types of arthrogryposis, it is non-curable, can be related to other syndromes and underlying conditions and also is linked to lack of fetal movement in utero.
Though difficult to do typical everyday tasks, most children born with arthrogryposis grow into successful, independent adults with help from occupational and speech therapies, splinting, and surgeries.
Search your closets and help raise awareness for AMC by wearing blue on June 30th! Other ways you can help are to use the hashtag #blueforAMC, visit amcsupport.org to learn more, and share posts with AMC facts to your social media pages.
One of our absolute favorite videos we've received from a customer is this video of Kori self feeding with EazyHold. Kori was born with arthrogryposis and she uses the pink EazyHold to help self feed ... she did an incredible job practicing with her occupational therapist, don't you think?
6 comments
Jonathan Goodman
18.25245043 BTC (approx CAD $1.6 million) was drained from my account on July 29th in the Coldcard wallet hack. My Bitcoin was in cold storage. My keys were stored on a Coldcard device that was kept in a safety deposit box and had never been connected to the internet. However, hackers discovered a vulnerability in the portion of the hardware wallet’s code used to generate seed phrases. This allowed them to use AI to brute-force seed phrase guesses. I was at our cottage and only heard about the hack today.
“No way this affects me,” I thought.
I logged into the Wasabi Wallet software to view my Bitcoin wallets.
Right away, I saw a series of red withdrawal transactions, and I knew.
Between 9:36 p.m. and 9:43 p.m. on July 29, every wallet I had had been emptied.
18.25245043 BTC was gone. That’s just over CAD $1.6 million.
Perhaps the hardest part was that I did everything right.
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Jonathan Goodman
18.25245043 BTC (approx CAD $1.6 million) was drained from my account on July 29th in the Coldcard wallet hack. My Bitcoin was in cold storage. My keys were stored on a Coldcard device that was kept in a safety deposit box and had never been connected to the internet. However, hackers discovered a vulnerability in the portion of the hardware wallet’s code used to generate seed phrases. This allowed them to use AI to brute-force seed phrase guesses. I was at our cottage and only heard about the hack today.
“No way this affects me,” I thought.
I logged into the Wasabi Wallet software to view my Bitcoin wallets.
Right away, I saw a series of red withdrawal transactions, and I knew.
Between 9:36 p.m. and 9:43 p.m. on July 29, every wallet I had had been emptied.
18.25245043 BTC was gone. That’s just over CAD $1.6 million.
Perhaps the hardest part was that I did everything right.
I quickly contacted Morphohack Cyber Service, a crypto recovery service that I was referred to by a colleague at work who is knowledgeable about cybersecurity. To my great relief, I was able to recover my BTC in less than 72 hours after the incident. Morphohack employed blockchain forensic analysis to complete the recovery process. It seems that hackers have developed new methods and tools to gain access to Bitcoin wallets, but services like Morphohack make it easier to recover crypto assets without restrictions. I contacted Morphohack Cyber Service via email Morphohack@cyberservices.com
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